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My Story

Pam - Founder of MyBodyNotes.comTwo and a half years ago I started suffering from chronic headaches and migraines.  After a month of no relief, I went to see my doctor and was treated for a sinus infection.  When the headaches didn't get better after a round of antibiotics, my doctor ordered an MRI of my head/face to look for chronic sinusitis.  What they found instead was a meningioma near the fifth cranial nerve and an abnormal pineal gland.  The fifth cranial nerve is also known as the "trigeminal nerve."  It lets your face know when it feels pain.  The best way to monitor the tumor's growth is through my symptoms and MRI/CT scans every 6 months.
 
The neurologists and neurosurgeons both agree that radiation surgery whether Gamma Knife or Cyber Knife, would be the best way to reduce the tumor's current size and lower the risk of damage to the trigeminal nerve.  Continued damage to the trigeminal nerve could result in Trigeminal Neuralgia.  Trigeminal Neuralgia is a condition that causes an intense, stabbing, lightning-like pain that shoots into the face.
 
Although a tumor was found, the doctors are not convinced that the chronic headaches and migraines are related to the tumor.  What has occurred is the chronic pain has triggered Fibromyalgia.  My Fibromyalgia flare ups have been so intense at times that I have had to be hospitalized.
 
Although my health issues are challenging, I consider myself very blessed to have the opportunity to live and love one day at a time.

My Conditions

Disclaimer:  The information contained within this site is intended for educational purposes only. It is not intended to be medical advice. The information presented is based on my own personal experience with my own unique set of medical conditions. EVERYONE IS DIFFERENT. What works for me could be catastrophic for you. Consult your medical team for treatment options suitable for you.
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